No One Should Face Hyperoxaluria Alone.
Connecting people. Expanding access. Driving progress.
— About the Alliance
One community. A stronger voice.
Uniting patients, caregivers, and advocates worldwide to improve diagnosis, treatment, access, and care for people affected by hyperoxaluria.
And growing.
— About Hyperoxaluria
Understanding hyperoxaluria
PH
Primary Hyperoxaluria
A group of rare genetic disorders that cause the body to produce too much oxalate.
EH
Enteric Hyperoxaluria
A condition that causes the body to absorb too much oxalate, often due to digestive disease or surgery.
— What We Do
Turning patient experience into action
Bringing together experiences from across the hyperoxaluria community can help identify unmet needs and drive meaningful change.
01
Listen
Hear the experiences of patients and families.
02
Learn
Understand shared challenges and unmet needs.
03
Act
Bring community priorities to decision-makers.
04
Drive Change
Work toward earlier diagnosis, better treatment, and fair access to care.
— Our Global Community —
Connected around the world
- Austria
- Belgium
- Brazil
- Canada
- Czech Republic
- Ecuador
- England
- Germany
- Hungary
- India
- Italy
- Mexico
- Netherlands
- New Zealand
- Pakistan
- Palestine
- Scotland
- Spain
- Switzerland
- United States
— Patient Advocacy Organizations
Working together across borders
A growing network of patient organizations supporting people affected by hyperoxaluria around the world.
Represent a registered nonprofit patient organization? Join as a patient advocacy organization
“We…come together and discuss the issues and barriers that we face in each of our countries….The most important thing is being able to be that bridge for other families and other children.”
— Aamerah, UK
— Why Join the Alliance?
Connect. Be heard. Help drive change.
Be part of a global community working together to improve the lives of people affected by hyperoxaluria.
Connect
Build connections with patients, caregivers, and advocates around the world.
Be Heard
Share experiences and help identify the needs and priorities that matter to the hyperoxaluria community.
Help Drive Change
Participate in surveys, advocacy, and initiatives aimed at improving diagnosis, treatment, access, and care.
— Join the Alliance
Join the Hyperoxaluria Global Alliance
Add your voice to a growing global community working to improve the future of hyperoxaluria.
There is a place for you here.
Whether you live with hyperoxaluria, care for someone affected, advocate in your community, or represent a patient organization, your experience and perspective matter.
After you submit the form, the HGA team will contact you with next steps.
Prefer to contact us directly? [HGA-EMAIL]
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